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TWENDE Qualitative Data Collection in Progress

 

Since May 2017 Qualitative Data Investigators (QDIs) for the European & Developing Countries Clinical Trials Partnership (EDCTP) funded Tuberculosis: Working to Empower Nations’ Diagnostic Efforts (TWENDE) research and advocacy study are actively collecting ‘new’ qualitative data – conducting interviews and focus group discussions – in Tanzania, Kenya and Uganda.

Ms. Norah Owaraga, Managing Director of CPAR Uganda Ltd, is the Social Scientist for TWENDE and in that capacity she is taking the lead in guiding qualitative data investigation for TWENDE.

For Uganda she is conducting qualitative data investigation in 20 districts representing all regions of the Country where she will conduct a total of 224 one-on-one interviews and nine focus group discussions. Read more about TWENDE Qualitative Data Investigation in Uganda here

For Tanzania Ms. Owaraga is supporting the two Tanzania TWENDE Principal Investigators (PIs), Dr. Nyanda Elias Ntinginya of the Mbeya Medical Research Centre of the National Institute for Medical Research of Tanzania (NIMR-MMRC) and Prof. Blandina Mmbaga of the Kilimanjaro Clinical Research Institute (KCRI) through training and mentoring of three Tanzania TWENDE QDIs: Ms. Erica Sanga and Mr. Simeon Mwanyonga both of the NIMR-MMRC and Ms. Elisabeth Frank Msoka of KCRI.

Ms. Sanga and Mr. Mwanyonga are currently conducting field work in Southern Tanzania where it is planned that they will conduct a total of 68 one-on-one interviews and six focus group discussions. Similarly, Ms. Msoka is currently conducting field work in Northern Tanzania where it is planned that she will conduct a total of 60 one-on-one interviews and five focus group discussions.

For Kenya Ms. Owaraga is supporting the Kenya TWENDE PI, Dr. Evans Inyagala Amukoye of the Kenya Medical Research Institute (KEMRI) through training and mentoring of two Kenya TWENDE QDIs: Mr. Fred Orina and Ms. Barbara Miheso, both of KEMRI. Mr. Orina and Ms. Miheso are currently conducting field work in 10 Counties of Kenya where it is planned that they will conduct a total of 73 one-on-one interviews and 13 focus group discussions.

Prior to commencement of ‘new’ qualitative data collection for TWENDE, the study received relevant ethics approvals as follows:

  • University of St. Andrews on 10th May 2016 acting on behalf of the University’s Teaching and Research Ethics Committee (UTREC) and through the University’s School of Medicine Ethics Committee granted approval to the TWENDE Consortium as represented by nine Lead Researchers to conduct the study.
  • Government of the United Republic of Tanzania (GoT) gave TWENDE a “Clearance Certificate for Conducting Medical Research in Tanzania.” Mwelecele N. Malecela – Chairperson Medical Research Coordinating Committee of the GoT and Prof. Muhammad Bakari Kambi – Chief Medical Officer of the Ministry of Health, Community Development, Gender, Elderly and Children of the GoT, in a letter dated 11th October 2016, communicated to the TWENDE the GoT’s decision granting TWENDE approval.
  • KEMRI Scientific and Ethics Review Unit (SERU) in a letter to the TWENDE Consortium dated 15th August 2016 and signed by Mr. Ambrose Rachier, SERU Chairman, informed of the approval for TWENDE to be conducted in Kenya.
  • Makerere University Kampala (MUK) School of Biomedical Sciences Higher Degree Research and Ethics Committee (SBS-HDREC) approved TWENDE to be conducted in Uganda. In a letter signed by Dr. Erisa Mwaka, Chairperson, SBS-HDREC and that is dated 9th September 2016 the SBS-HDREC informed the TWENDE Consortium that it met all the requirements as stated by SBS-HDREC and therefore, the protocol was APPROVED.
  • Uganda National Council for Science and Technology (UNCST) on 10th October 2016 approved TWENDE to be conducted in Uganda. Approval from UNCST also denotes approval from the Office of the President of the Government of the Republic of Uganda.

Preliminary findings from the TWENDE Qualitative Data Investigation are during the third quarter of 2017.

Photo Credit: Taken by Norah Owaraga – TWENDE QDIs in Training at Roots Retreat and Camping Resort, in Wakiso District in Uganda.